Scientific Abstracts 7
declared, Tristan Pascart Consultant of: Novartis, Grant/research support from:
Horizon Pharmaceuticals, Fernando Perez-Ruiz: None declared, IRENE Pitsil-
lidou: None declared, Fabian Proft: None declared, Jürgen Rech: None declared,
Wolfgang A. Schmidt: None declared, Luca Maria Sconenza Consultant of:
Esaote SPA, Samsung Medison, Fidia Farmaceutici, Pzer, Novartis, Janssen
Cilag, Abiogen, Bracco Imaging Italia, MSD, Merck Serono, Grant/research sup-
port from: Esaote SPA, Samsung Medison, Fidia Farmaceutici, Pzer, Novar-
tis, Janssen Cilag, Abiogen, Bracco Imaging Italia, MSD, Merck Serono, Lene
Terslev: None declared, Brigitte Wildner: None declared, Pascal Zufferey: None
declared, Georgios Filippou: None declared.
DOI: 10.1136/annrheumdis-2023-eular.2414
"Buy one - get 4 free" - RMDs and comorbidities
OP0009-PARE CREATIVITY AND CO-PRODUCTION TO SUPPORT
PEOPLE LIVING WITH CHRONIC PAIN WITH THEIR
MENTAL HEALTH
Keywords: Mental health, Pain, Patient information and education
L.Campbell
1
, P.Callaghan
2
, C. A.Chew-Graham
3
, K.Dziedzic
1
, N.Evans
1
,
T.Kingstone
3
, L.Group
1
, K.Stevenson
4
.
1
Keele University, Impact Accelerator
Unit, Newcastle Under Lyme, United Kingdom;
2
Patient and Public Member,
Keele University, Newcastle Under Lyme, United Kingdom;
3
Medical School,
Keele University, Newcaste Under Lyme, United Kingdom;
4
Midlands
Partnership NHS Foundation Trust, Physiotherapy Department, Stoke on Trent,
United Kingdom
Background: As many as 1-in-5 people are living with chronic pain (pain for three
or more months) in the UK. Living with a long-term health condition can increase
the likelihood of experiencing poor mental health. Having access to high-quality
resources to raise mental health awareness and support good mental health
among this population is crucial. Co-production of patient-facing resources with
people with lived experience of health conditions (experts by experience) has
been acknowledged as an important way of achieving impact and engagement.
Objectives: To describe how branding and design expertise was used to co-pro-
duce with experts by experience evidence-based, patient-facing animations to
support the mental health needs of people with chronic pain.
Methods: A task and nish group (n=10) met virtually six times over 12 months from
March 2020. The group included patients, public, representatives of charities, hospital
volunteers, researchers and design experts. The group started with a blank canvas
and worked together to decide which evidence-based messages to include in the
resources, their format and style, and where and how they would be implemented.
The group decided to create one website to host branded resources:
A positive and informative animation and social media content
Free online training for healthcare professionals, public and volunteers to
improve awareness of the links between pain and mental health
A library of local support resources
The marketing and design experts facilitated collaborative working to develop clini-
cal (physiotherapist, general practitioner) and patient (retired, volunteer, carer) ‘per-
sonas’ to better understand the intended resource end-users. The group explored
in-depth the emotions, thoughts and actions conveyed by the resources through
word clouds and brainstorming. This helped the group to create a brand, the central
character and provided vision for the style of the resources. Through facilitated dis-
cussion with design experts, the group co-produced animation storyboards, the plain
language text on the website, training package, animation and local support library,
and the nal overall brand by choosing logos, colour schemes, fonts and images.
Results: The group chose Support, Progression and Freedom through ‘Mind and
Movement’ as the key words on which to base the resources. Patients and the
public suggested that a human character would not represent all people living with
chronic pain; so, a bee was chosen to be the central character. It was agreed that
the bee personied the key words whilst generating an engaging theme. The group
agreed to name the resource package ‘BeeFree with the website slogan ‘a support
hive for mind and movement’. All resources were based around ve evidence-based
messages (Get Active, Get Talking, Get Creative, Eat Well and Sleep Well) called
‘The Hive Five and were housed on a new branded website - www.beefree.org.
uk BeeFree was successfully launched online via regional NHS Trusts, charity
and voluntary groups, First Contact Physiotherapy networks and social media
in 2021. Patients and the public championed the resources and facilitated the
launch. Challenges for the clinical group members included negotiating time and
commitment to the work amidst multiple pandemic-related NHS pressures, and
for the public group members there were difficulties adapting to working collab-
oratively online.
Figure 1.
Conclusion: Co-creating a positive, recognisable brand with patients and the
public can facilitate the promotion and impact of evidence-based messages into
healthcare. In the pandemic online co-production approaches offered creative
adaptations to bring together stakeholders. Utilising design expertise and taking
time to build and nurture relationships with patients and the public resulted in
valuable and insightful co-production and consequently highly accessible and
engaging resources.
Acknowledgements: Midlands Partnership NHS Trust, North Staffordshire NHS
Combined Healthcare Trust, Haywood Foundation, Mind, Q Lab, Health Founda-
tion, More Than Just Design.
Disclosure of Interests: None Declared.
DOI: 10.1136/annrheumdis-2023-eular.2687
OP0010-PARE PRELIMINARY FINDINGS OF QUALITATIVE
EXPLORATION OF THE EFFECTIVENESS OF AN
ONLINE “FATIGUE AND ACTIVITY MANAGEMENT
EDUCATION IN WORK” (FAME-W) INTERVENTION FOR
INDIVIDUALS WITH INFLAMMATORY ARTHRITIS
Keywords: Self-management, Work-related issues, Telemedicine
S.Karkon
1
, F.O’shea
2
, R.Conway
2
, M.Doran
2
, A.O’ Gorman
3
, H.Mccormack
3
,
B.Irudayaraj
4
, D.Connolly
1
.
1
Trinity College Dublin, Occupational Therapy,
Dublin, Ireland;
2
St Jamess Hospital, Rheumatology, Dublin 8, Ireland;
3
St
Jamess Hospital, Occupational Therapy, Dublin 8, Ireland;
4
University Hospital
Waterford, Occupational Therapy, Waterford, Ireland
Background: A Fatigue and Activity Management Education in Work (FAME-W)
programme was developed for individuals with inammatory arthritis to manage
fatigue in work (McCormick, 2018). FAME-W was designed as an in-person pro-
gramme; however, due to COVID-19 pandemic it was modied to be an online
group-based self-management intervention.
Objectives: This study tested the effectiveness of an online format of FAME-W
for future use by occupational therapist to help individuals with inammatory
arthritis to stay in work.
Methods: Participants were randomly allocated to intervention or control groups.
Participants in the intervention group received the online four-week FAME-W and
the control group participants received a FAME-W handbook. Participants in the
intervention group attended a focus group immediately after the completion of
the online FAME-W programme. A qualitative descriptive design was used with
semi-structured focus groups. Data were analysed by thematic analysis (Braun
and Clark, 2021).
Results: Twenty-six individuals took part in ve separate focus groups. The aver-
age number of participants per group was 5 individuals with the largest group
having 8 and smallest having 3 participants. The majority of participants were
female, working full time and had Rheumatoid Arthritis. The four themes emerg-
ing from the focus groups were: “content and delivery of the programme” where
participants discussed the relevance of the content to their symptoms and the
online delivery format of FAME-W. In the second theme, participants discussed
“understanding the effects of symptoms on their own and combined” and how
symptoms effect mood, work, cognitive and physical abilities. In the third theme,
“implementing the knowledge gained from the programme” through goal setting
and practicality of the self-management strategies provided were discussed.
Final theme “impact of the FAME-W on symptoms and work” including reassur-
ance of normalising symptoms, change in mindset and approach to their condi-
tion were discussed.
on September 5, 2024 by guest. Protected by copyright.http://ard.bmj.com/Ann Rheum Dis: first published as 10.1136/annrheumdis-2023-eular.2687 on 30 May 2023. Downloaded from